When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying. Ultimately Sebastian is saved with a groundbreaking technique pioneered and practiced by the medical wizards at Duke University Hospital. Deeply researched and darkly humorous, this is a wrenching tale with a triumphant ending.
About the book
When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying. Ultimately Sebastian is saved with a groundbreaking technique pioneered and practiced by the medical wizards at Duke University Hospital. Deeply researched and darkly humorous, this is a wrenching tale with a triumphant ending.